Living with Dementia

Dementia is not just losing your memory. It changes every aspect of your life including Social Interaction, Communication, Reasoning, Emotions, Reading Ability, and on and on. Through my blog, dementiadaze.com, I am hoping others will better understand this disease, PWD (Persons With Dementia) will find encouragement, and Care Givers will get a glimpse of our feelings. While I am still able, I share my journey through the progressing stages in hopes of helping others through their path.

Accepting Change

Like the waves hitting the beach, life is constantly changing and we are constantly changing with it.  Change is an inevitable part of life.  We develop, we age.   We laugh, we cry.  We dislike, we love.   And as our lives transform, we either try to deny or resist the change, take action to modify the change, and/or we embrace the transformation and work with (or through) it.


What They Don’t Tell You About Dementia

When I was diagnosed with dementia (Early On-Set Alzheimer’s and Frontotemporal Degeneration) the doctors told me and my husband:

  1. My working days were over
  2. I needed to “Get my affairs in order and see an attorney”
  3. The time would come when I wouldn’t recognize my loved ones
  4. For any additional information, we should go to the Alzheimer’s Association Website
  5. I may experience “sun-downing” in the late afternoons
  6. Come back in six months to see how rapidly you have progressed

I no longer wanted just to survive with dementia, I wanted to thrive!

When I was diagnosed with Early On-Set Alzheimer’s and FTD (Fronto-Temporal Degeneration/Dementia) the doctor’s only advise was “Go home, put your affairs in order, see an Elder Care Attorney and come back in six months.”  We left his office with the understanding that I would forget my loved ones and die at any time.


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4 thoughts on “Living with Dementia

  1. Earl Bailey

    Greetings Laurie, I was so sorry to hear the latest news from you. There are times I think I may be going through the same experience but Ithink it’s just age. I am 75 now so I guess I have the right to forget sometimes. I’m going to put your name of my daily prayer list.
    Judy bought a small wooden sign for my desk that says: “My mind not only wanders, it sometimes leaves me completely.”
    Every once in a while I think back to Portsmouth Camp and all the kids I ministered to the years I was there. Are you in contact with any of them?
    Please know that I am sending my love and prayers. You were a great part of the present radio ministry.
    Kept in His Mighty Grip by His Outstanding Grace,
    Earl

    Liked by 1 person

  2. Mary

    Usually I don’t learn post on blogs, however I would like
    to say that this write-up very pressured me to check out and do it!
    Your writing style has been amazed me. Thank you, quite nice article.

    Liked by 1 person

  3. Marinus Otte

    Dear Laurie, many thanks for sharing your story with our son Velsen last night at the restaurant in Kralendijk. He is writing in his journal again this morning, July 2nd, 2015. You may have stimulated him to do so throughout his life! We wish you and yours strength and happiness. Velsen, Donna and Marinus.

    Liked by 1 person

    1. Laurie Scherrer Post author

      It was a pleasure meeting you. I made notes how well behaved and curious Velsen was. Please tell him he can stay in touch if he wants. You have done a wonderful job training your son – he is remarkable! I am happy I am still able to encourage our youth.

      Like

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