My Dementia Resources Books, Links, FB Groups

Dementia Daze mindgame

This is a list of Websites, Facebook Pages & Books that have helped me through Dementia Daze.  As I am sure I have forgotton some, I will add to the list as I find more.   In addition to these, I have found Teepa Snow to be one of my greatest resources.  Many of her videos are available on UTube or on her website.

Websites & Blogs By PWD (Persons with Dementia)

Dementia Daze By Laurie Scherrer http://dementiadaze.com

Living With Alzheimer’s by Dr Jennifer Bute http://www.gloriousopportunity.org

Creating Life by Kate Swaffer http://www.kateswaffer.com

Truthful Loving Kindness http://truthfulkindness.com

Rick Phelps While I Still Can http://phelps2645.blogspot.com

Diagnosed at 44 by Melanie Wagner https://mwagner21.wordpress.com

Living Beyond LBD Diagnosis By Robert Bowles http://www.lbdlivingbeyonddiagnosis.com

Faces of Dementia by Barry Pankhurst http://www.facesofdementia.co.uk

Support & Advocacy Of, By & For PWD http://www.dementiaallianceinternational.org

Norms McNamara Torbay Dementia Alliance http://tdaa.global/

PWD Perspectives By Truthful Kindness PWDPerspective https://paper.li/f-1408973778

My Thought on Dementia By Harry Urban http://www.mythoughtsondementia.com

PWD supporting other PWD: http://dementiamentors.com/index.html

Website Resources

National Institute of Aging http://www.nia.nih.gov/alzheimers

Life Inside Alzheimer’s http://www.fadetoblank.org/#/?part=cause-for-concern

Support & Information for Dementia Life http://www.alzheimersweekly.com

Common Sense Caregiving by Gary LeBlanc http://us8.campaign-archive2.com/home/u=930d14d4be8b4c04fbdd888fd&id=0caa3b7c25

Alheimer’s Association http://www.alz.org

Dementia Activities http://www.theactivitydirectorsoffice.com/Gina_ActivityIdeasThatWork_Alzheimers.html

The Caregiver’s Voice http://thecaregiversvoice.com

A Journey through Alzheimer’s http://www.junebergalzheimers.com

Alzheimer’s Speaks Lori LaBey Radio Talk Host https://alzheimersspeaks.wordpress.com

The Purple Angel Program http://www.purpleangel-global.com

Alzheimer’s, Autism & Other Cognitive Impairments http://www.a-betterunderstanding.com

Susan’s Journey through Alzheimer’s with her Mom http://myalzheimersstory.com

Irene Mackay – Dementia Training for Children http://www.irenemackay.com

Facebook Groups: Virtual Memory Cafe, Forget Me Not, Memory People, Early-Onset Alzheimer’s,  Walking together with Margi on her journey, Living Well with Alzheimer’s, Dementia Aware, Dementia Study – Group for students of dementia, Dementia Information For Diagnosed, Family Members,Caregivers&Professionals Caregiver’s, Comfy Chair at Maria’s Place

Books I Recommend:

All the Dancing Birds by Auburn McCanta

Alzheimer’s from the Inside Out by Richard Taylor

Creating Moments of Joy by Jolene Brackey

Staying Afloat in a Sea of Forgetfulness by Gary Joseph LeBlanc

The 36 Hour Day by Nancy Mace & Peter Rabins

While I Still Can by Rick Phelps

You Say Goodbye, We Say Hello by Tom & Karen Brenner

love in the land of dementiaconnecting in the land of dementia

alzheimers disease book

CHILDREN’S BOOKS:

Still Grandma by Maria Shriver

The Forgetful Elephant by Irene Mackay

What’s Happening to Grandpa by Maria Shriver

Why Did Grandma put her Underwear in the Refrigerator by Max Wallack

4 thoughts on “My Dementia Resources Books, Links, FB Groups

  1. marilc22

    hi Laurie, I found out about your blog from Deborah Shouse, who wrote about you today. I don’t have Alzheimers but when I saw your video about the sheets I thought – what a great idea! I dislike making beds because of having to figure out where to put the corners on those darned fitted sheets. what a clever solution – to put tags on the bottom middle. I don’t sew but I’m going to try to figure out a way to mark the bottom middle of my sheets so I can always tell. Thank you!

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  2. Laurie Scherrer Post author

    Thank you for your comment and interest in my website. The sheet tags have been a great help to me. If you do not sew; you may want to attach a piece of fabric with a small safety pin. I think this would work on most fabrics without causing it to fray.

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  3. marilc22

    good idea. or maybe I can just use a fabric pen to mark it since it won’t show once the top sheet is in place. BTW, I didn’t see Deborah’s book listed in your resources. I think both her books (Love in the Land of Dementia and Connecting in the Land of Dementia) are great resources.

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