My Dementia Resources Books, Links, FB Groups

Dementia Daze mindgame

This is a list of Websites, Facebook Pages & Books that have helped me through Dementia Daze.  As I am sure I have forgotton some, I will add to the list as I find more.   In addition to these, I have found Teepa Snow to be one of my greatest resources.  Many of her videos are available on UTube or on her website.

Websites & Blogs By PWD (Persons with Dementia)

Dementia Daze By Laurie Scherrer http://dementiadaze.com

Living With Alzheimer’s by Dr Jennifer Bute http://www.gloriousopportunity.org

Creating Life by Kate Swaffer http://www.kateswaffer.com

Truthful Loving Kindness http://truthfulkindness.com

Rick Phelps While I Still Can http://phelps2645.blogspot.com

Diagnosed at 44 by Melanie Wagner https://mwagner21.wordpress.com

Living Beyond LBD Diagnosis By Robert Bowles http://www.lbdlivingbeyonddiagnosis.com

Faces of Dementia by Barry Pankhurst http://www.facesofdementia.co.uk

Support & Advocacy Of, By & For PWD http://www.dementiaallianceinternational.org

Norms McNamara Torbay Dementia Alliance http://tdaa.global/

PWD Perspectives By Truthful Kindness PWDPerspective https://paper.li/f-1408973778

My Thought on Dementia By Harry Urban http://www.mythoughtsondementia.com

PWD supporting other PWD: http://dementiamentors.com/index.html

Website Resources

National Institute of Aging http://www.nia.nih.gov/alzheimers

Life Inside Alzheimer’s http://www.fadetoblank.org/#/?part=cause-for-concern

Support & Information for Dementia Life http://www.alzheimersweekly.com

Common Sense Caregiving by Gary LeBlanc http://us8.campaign-archive2.com/home/u=930d14d4be8b4c04fbdd888fd&id=0caa3b7c25

Alheimer’s Association http://www.alz.org

Dementia Activities http://www.theactivitydirectorsoffice.com/Gina_ActivityIdeasThatWork_Alzheimers.html

The Caregiver’s Voice http://thecaregiversvoice.com

A Journey through Alzheimer’s http://www.junebergalzheimers.com

Alzheimer’s Speaks Lori LaBey Radio Talk Host https://alzheimersspeaks.wordpress.com

The Purple Angel Program http://www.purpleangel-global.com

Alzheimer’s, Autism & Other Cognitive Impairments http://www.a-betterunderstanding.com

Susan’s Journey through Alzheimer’s with her Mom http://myalzheimersstory.com

Irene Mackay – Dementia Training for Children http://www.irenemackay.com

Facebook Groups: Virtual Memory Cafe, Forget Me Not, Memory People, Early-Onset Alzheimer’s,  Walking together with Margi on her journey, Living Well with Alzheimer’s, Dementia Aware, Dementia Study – Group for students of dementia, Dementia Information For Diagnosed, Family Members,Caregivers&Professionals Caregiver’s, Comfy Chair at Maria’s Place

Books I Recommend:

All the Dancing Birds by Auburn McCanta

Alzheimer’s from the Inside Out by Richard Taylor

Creating Moments of Joy by Jolene Brackey

Staying Afloat in a Sea of Forgetfulness by Gary Joseph LeBlanc

The 36 Hour Day by Nancy Mace & Peter Rabins

While I Still Can by Rick Phelps

You Say Goodbye, We Say Hello by Tom & Karen Brenner

love in the land of dementiaconnecting in the land of dementia

alzheimers disease book

CHILDREN’S BOOKS:

Still Grandma by Maria Shriver

The Forgetful Elephant by Irene Mackay

What’s Happening to Grandpa by Maria Shriver

Why Did Grandma put her Underwear in the Refrigerator by Max Wallack

8 thoughts on “My Dementia Resources Books, Links, FB Groups

  1. marilc22

    hi Laurie, I found out about your blog from Deborah Shouse, who wrote about you today. I don’t have Alzheimers but when I saw your video about the sheets I thought – what a great idea! I dislike making beds because of having to figure out where to put the corners on those darned fitted sheets. what a clever solution – to put tags on the bottom middle. I don’t sew but I’m going to try to figure out a way to mark the bottom middle of my sheets so I can always tell. Thank you!

    Liked by 1 person

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  2. Laurie Scherrer Post author

    Thank you for your comment and interest in my website. The sheet tags have been a great help to me. If you do not sew; you may want to attach a piece of fabric with a small safety pin. I think this would work on most fabrics without causing it to fray.

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  3. marilc22

    good idea. or maybe I can just use a fabric pen to mark it since it won’t show once the top sheet is in place. BTW, I didn’t see Deborah’s book listed in your resources. I think both her books (Love in the Land of Dementia and Connecting in the Land of Dementia) are great resources.

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  4. Valerie Schache

    Add Dementia Alliance International. The webinars cover soo many diverse subjects and worlds best on all aspects of dementia. Valerie Schache. Senior Research Development person. Very proud of being in the top 18 sites on u- tube.

    Liked by 1 person

    Reply
  5. Lora

    Hi Laurie,
    I’ve been working with Professor Mariana Figueiro, head of Rensselaer Polytechnic Institute’s Lighting Research Center, on creating this resource on how lighting can be used in assisted living and nursing homes for Alzheimer’s patients.

    I think this is something that deserves some more attention, so I am reaching out to ask for your help in spreading the word.

    Do you mind sharing the link in your resources page or on your blog: https://www.cocoweb.com/blog/light-therapy/

    Please let me know if you have additional questions

    Lora B.
    Head of research and content

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