This is a list of Websites, Facebook Pages & Books that have helped me through Dementia Daze. As I am sure I have forgotton some, I will add to the list as I find more. In addition to these, I have found Teepa Snow to be one of my greatest resources. Many of her videos are available on UTube or on her website.
Websites & Blogs By PWD (Persons with Dementia)
Dementia Daze By Laurie Scherrer http://dementiadaze.com
Living With Alzheimer’s by Dr Jennifer Bute http://www.gloriousopportunity.org
Creating Life by Kate Swaffer http://www.kateswaffer.com
Truthful Loving Kindness http://truthfulkindness.com
Rick Phelps While I Still Can http://phelps2645.blogspot.com
Diagnosed at 44 by Melanie Wagner https://mwagner21.wordpress.com
Living Beyond LBD Diagnosis By Robert Bowles http://www.lbdlivingbeyonddiagnosis.com
Faces of Dementia by Barry Pankhurst http://www.facesofdementia.co.uk
Support & Advocacy Of, By & For PWD http://www.dementiaallianceinternational.org
Norms McNamara Torbay Dementia Alliance http://tdaa.global/
PWD Perspectives By Truthful Kindness PWDPerspective https://paper.li/f-1408973778
My Thought on Dementia By Harry Urban http://www.mythoughtsondementia.com
PWD supporting other PWD: http://dementiamentors.com/index.html
National Institute of Aging http://www.nia.nih.gov/alzheimers
Life Inside Alzheimer’s http://www.fadetoblank.org/#/?part=cause-for-concern
Support & Information for Dementia Life http://www.alzheimersweekly.com
Common Sense Caregiving by Gary LeBlanc http://us8.campaign-archive2.com/home/u=930d14d4be8b4c04fbdd888fd&id=0caa3b7c25
Alheimer’s Association http://www.alz.org
Dementia Activities http://www.theactivitydirectorsoffice.com/Gina_ActivityIdeasThatWork_Alzheimers.html
The Caregiver’s Voice http://thecaregiversvoice.com
A Journey through Alzheimer’s http://www.junebergalzheimers.com
Alzheimer’s Speaks Lori LaBey Radio Talk Host https://alzheimersspeaks.wordpress.com
The Purple Angel Program http://www.purpleangel-global.com
Alzheimer’s, Autism & Other Cognitive Impairments http://www.a-betterunderstanding.com
Susan’s Journey through Alzheimer’s with her Mom http://myalzheimersstory.com
Irene Mackay – Dementia Training for Children http://www.irenemackay.com
Facebook Groups: Virtual Memory Cafe, Forget Me Not, Memory People, Early-Onset Alzheimer’s, Walking together with Margi on her journey, Living Well with Alzheimer’s, Dementia Aware, Dementia Study – Group for students of dementia, Dementia Information For Diagnosed, Family Members,Caregivers&Professionals Caregiver’s, Comfy Chair at Maria’s Place
Books I Recommend:
All the Dancing Birds by Auburn McCanta
Alzheimer’s from the Inside Out by Richard Taylor
Creating Moments of Joy by Jolene Brackey
Staying Afloat in a Sea of Forgetfulness by Gary Joseph LeBlanc
The 36 Hour Day by Nancy Mace & Peter Rabins
While I Still Can by Rick Phelps
You Say Goodbye, We Say Hello by Tom & Karen Brenner
Still Grandma by Maria Shriver
The Forgetful Elephant by Irene Mackay
What’s Happening to Grandpa by Maria Shriver
Why Did Grandma put her Underwear in the Refrigerator by Max Wallack
hi Laurie, I found out about your blog from Deborah Shouse, who wrote about you today. I don’t have Alzheimers but when I saw your video about the sheets I thought – what a great idea! I dislike making beds because of having to figure out where to put the corners on those darned fitted sheets. what a clever solution – to put tags on the bottom middle. I don’t sew but I’m going to try to figure out a way to mark the bottom middle of my sheets so I can always tell. Thank you!
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Thank you for your comment and interest in my website. The sheet tags have been a great help to me. If you do not sew; you may want to attach a piece of fabric with a small safety pin. I think this would work on most fabrics without causing it to fray.
good idea. or maybe I can just use a fabric pen to mark it since it won’t show once the top sheet is in place. BTW, I didn’t see Deborah’s book listed in your resources. I think both her books (Love in the Land of Dementia and Connecting in the Land of Dementia) are great resources.
Thanks for reminding me! That list is long over due for an update. I will get it update this week.
Add Dementia Alliance International. The webinars cover soo many diverse subjects and worlds best on all aspects of dementia. Valerie Schache. Senior Research Development person. Very proud of being in the top 18 sites on u- tube.
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Thank you for your comment and congrats on being in the top 18 sites!
I’ve been working with Professor Mariana Figueiro, head of Rensselaer Polytechnic Institute’s Lighting Research Center, on creating this resource on how lighting can be used in assisted living and nursing homes for Alzheimer’s patients.
I think this is something that deserves some more attention, so I am reaching out to ask for your help in spreading the word.
Do you mind sharing the link in your resources page or on your blog: https://www.cocoweb.com/blog/light-therapy/
Please let me know if you have additional questions
Head of research and content
Lora, Thank you for reaching out to me. I do not share other posts on my website. However; I do have two resources that I would like to explore with you. Please email me at email@example.com so we can discuss.